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Consumer Health Data Privacy Policy

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Last modified: August 13, 2025

Prevention Research Institute ("PRI", "We") is committed to respecting your privacy. Our Privacy Policy describes how we handle your personal data generally. This supplemental Consumer Health Data Privacy Policy ("Health Privacy Policy") explains our practices for "Consumer Health Data" as such term is defined by applicable health privacy laws, as each are amended, and as and when they become effective including any regulations thereunder ("U.S. Health Privacy Laws"). 

"Consumer Health Data" is broadly defined to mean personal information that is linked or can be reasonably linked to a consumer and that identifies past, present or future physical or mental health status. Consumer Health Data does not include information pertaining to individuals with whom we have an employment relationship.

Please read this Health Privacy Policy carefully to understand our policies and practices regarding your Consumer Health Data and how we will treat it. If you do not agree with our policies and practices, you should not use our sites, products, applications, platforms, or services that are linked to this Health Privacy Policy (collectively, "Services").

If we make any material updates to this Health Privacy Policy, we will notify you as required by U.S. Health Privacy Laws, including by either notifying you at the time of collecting Consumer Health Data, or by updating this Health Privacy Policy earlier than required. We reserve the right to amend this Health Privacy Policy at our discretion and at any time. 

Categories of Consumer Health Data that We May Collect

We only collect, use and disclose Consumer Health Data as needed to provide you with the Services that you request or with your consent.

We may collect Consumer Health Data related to the following categories of Consumer Health Data:

Social and Psychological Behaviors and Intervention. Information gathered from your survey responses about your alcohol-related or drug-related behaviors, such as category type of substances used (e.g., alcohol, THC, prescription pain medications, cocaine, etc.), or personality traits, habits and characteristics associated with substance use. 

Use of Prescription Medication. Information gathered from your survey responses about the category type of substances used (i.e. prescription drugs used in a non-prescribed manner).  

Family Health History. Information about use of alcohol and/or drugs by biological relatives and assessment of biological risk factors, including high initial tolerance to alcohol and unusually pleasurable responses to substances. 

Other Data. Other information that could identify your attempt to seek health care services or information, or any inferences of the above categories of health data derived or extrapolated from non-health information.

For any Consumer Health Data that constitutes "Sensitive Data" as defined under applicable U.S. Health Privacy Laws, we will first obtain your affirmative consent before collecting, using, or sharing that health data in compliance with those privacy laws. 

For all other Consumer Health Data, we will not collect, use, or share additional categories of Consumer Health Data not disclosed in this Consumer Health Privacy Notice without first disclosing the additional categories and obtaining your affirmative consent prior to the collection, use, or sharing of that health data.

Please note that Consumer Health Data protected by this statute does not include data that cannot reasonably be used to infer information about, or otherwise be linked to, you ("deidentified data"). We take reasonable measures to protect deidentified data, and we only process such data in a deidentified fashion without attempting to reidentify such data. We will contractually obligate any recipients of deidentified data to also take reasonable measures and process such data in the same fashion as we do.

Purposes for Collecting Consumer Health Data and How We Use It

We use these categories of Consumer Health Data for the following purposes:

  • Services, including providing you with services you request from us.
  • Research & Development, such as our internal research, designing and developing new services, and improving our Services, customer relationships, and consumer experiences.
  • Security, including undertaking activities to prevent, detect, and investigate security incidents that compromise the availability, authenticity, integrity, or confidentiality of stored or transmitted Consumer Health Data or that otherwise threaten to compromise the performance, security, or integrity of our business.
  • Recordkeeping and auditing, including recordkeeping and auditing interactions with consumers, including logs and records maintained as part of transaction information.
  • Legal/Compliance: Complying with our legal obligations and risk management, audit, investigations and reporting, and other legal and compliance reasons.
  • For any other purpose as may be permitted by law or that we describe when you provide the information. 

Sources of Consumer Health Data 

We collect Consumer Health Data from the following sources:

  • You, such as when you request certain health-related Services, or when you give us information about your Consumer Health Data by interacting with our website, or by communicating with us via email or contact us page.  This includes Consumer Health Data you voluntarily provide by emailing us about our website or Services, leaving feedback on our Contact Us form, or responding to our surveys.
  • Your device when you visit or interact with our sites, applications, or services, including through cookies, web beacons, and similar technologies that automatically send us information when you browse, use, visit, or otherwise interact with our sites, applications, or services.
  • We may collect information from third-party providers such as X (formerly Twitter), Meta (Facebook, Instagram), and Google Analytics. The information we may collect includes your feedback about our Services on our social media pages and accounts.
  • We may also infer or derive Consumer Health Data by analyzing other non-health related data we have about you or other consumers.

Disclosure of Consumer Health Data 

We do not sell your Consumer Health Data. 

We may disclose categories of Consumer Health Data described above in the following circumstances:

  • We may disclose Consumer Health Data with our data processors, service providers, and contractors who assist us in providing Services to you. These processors may only use the data as permitted by our contracts with them.
  • We may also disclose Consumer Health Data as permitted by law, such as (i) with your consent, (ii) if needed to protect your vital interests, such as in the event of a medical emergency or natural disaster, (iii) to an acquiring organization if we are involved in a sale or a transfer of our business, (iv) as needed to prevent, detect, protect against, or respond to security incidents, identity theft, fraud, harassment, malicious or deceptive activities, (v) as needed to preserve the integrity or security of our systems, or (vi) to investigate, report, or prosecute those responsible for any action that is illegal under applicable state or Federal law.

Your Privacy Rights

You have specific rights with respect to your Consumer Health Data. 

You have the right to know if we are collecting, using or disclosing your Consumer Health Data, to access that consumer health data, including receiving a list of the entities and affiliates with whom we have shared or sold your information, though currently we do not sell or share your Consumer Health Data with Third Parties or Affiliates.

You have the right to request that we delete your Consumer Health Data. 

If you think some of the personal information we have about you is incorrect, you have the right to request that we correct the personal information in compliance with applicable U.S. Health Privacy Laws. 

If we are processing your Consumer Health Data with your consent, you have the right to withdraw that consent. For cookie-related Consumer Health Data, you can do this by visiting your "Cookie Preferences" in the bottom right corner of our health-related websites or in the Settings menu of our mobile applications. Withdrawing your consent for collection of non-cookie related Consumer Health Data will effectuate a deletion request.

We will not discriminate against you for exercising any of your rights. However, if you withdraw consent for collection and/or request deletion of your Consumer Health Data, we may remove you from certain marketing programs that rely on your Consumer Health Data to provide you the Services.

  1. To exercise these rights, you may submit a request by emailing us at support@primeforlife.org  or messaging us via our Contact Us webpage. We will respond to your request as required by applicable law. When you submit a request regarding your Consumer Health Data, we reserve the right to verify your identity in connection with any requests regarding Consumer Health Data to help ensure that we provide the information we maintain to the individuals to whom it pertains and allow only those individuals to exercise rights with respect to that information.
  2. To help us respond to your request, all communication to us should include the sender’s name and contact information (such as email address, phone number or mailing address), and a detailed explanation of the request. We will endeavor to respond to all reasonable requests in a timely manner, and in any case, within any time limits prescribed by applicable local law.
  3. Any questions, concerns, complaints, or appeals regarding handling of Consumer Health Data, or related to revocation of consent to collect, process, transfer, or disclose your Consumer Health Data should be directed by email to support@primeforlife.org, or through our Contact Us webpage.  If your appeal is unsuccessful, you can file a complaint with the relevant government body in your state, including:
  1. Please contact us directly with any questions or concerns you may have about your Consumer Health Data privacy or this Health Privacy Policy. You can contact us via our Contact Us page.  You may also contact us by telephone at 1-800-922-9489 or 1-859-223-3392, email at support@primeforlife.org, or by mail at the following address:
  2. PO Box 22124
  3. Lexington, KY 40522

 

 

 

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